Genetic Data

Healthcare Innovators and Investors, Take Note: The HIPAA Privacy RFI Can Benefit You

This past Friday, the Office of Civil Rights within the U.S. Department of Health and Human Services published a formal Request for Information on Modifying HIPAA Rules to Improve Coordinated Care. The RFI’s publication starts a 60-day comment period ending on February 12, 2019. As many of us prepare for the J.P. Morgan Healthcare Conference in January, and then HIMSS in February, savvy healthcare innovators and investors will recognize this RFI as an opportunity to help frame the discussion about how to lower privacy barriers… more

The Importance of Context with Genetic Privacy

As consumers, when we think of privacy, one of the first adjectives that springs to mind should be “inconsistent.” Consumers claim to want their personal information used only for the purposes they originally provided it, and protected until (somewhat famously) they are asked to exchange their passwords for chocolate. This privacy paradox has been supported both anecdotally and with data-based studies. Without biting into the question of the quality of chocolate offered in the password exchange, the general point remains that individuals’ comfort levels appear… more